Feature Story: Living with Neurofibromatosis: Mila’s Journey

An example of a Lived Experience Narrative. 

Mia's Lived Experience Narrative, supported Advoca-Lab's submission for the Governor of South Australia to host a morning tea for the South Australian Neurofibromatosis Community of SA. 

Advocacy Guide

This guide distils hard-won lessons into a clear, usable format.

It is deliberately brief, structured as an A4 booklet, and designed for accessibility and real-world use: not theory, not fluff.

It does not guarantee outcomes.

It does aim to raise the standard of advocacy practice and reduce avoidable mistakes.

I created this to support organisations and carers who are stepping into advocacy without a roadmap, because credibility, ethics, and discipline matte