Feature Story: Living with Neurofibromatosis: Mila’s Journey
An example of a Lived Experience Narrative.
Mia's Lived Experience Narrative, supported Advoca-Lab's submission for the Governor of South Australia to host a morning tea for the South Australian Neurofibromatosis Community of SA.
Political Advocacy Letter Exemplar: NF Awareness month.
The following is an example of a political advocacy letter that can be sent to your local MP. It is provided as a guide only. Notice how it keeps the message clear, focuses on lived experience, and links that experience to a broader system issue.
Advocacy Guide
This guide distils hard-won lessons into a clear, usable format.
It is deliberately brief, structured as an A4 booklet, and designed for accessibility and real-world use: not theory, not fluff.
It does not guarantee outcomes.
It does aim to raise the standard of advocacy practice and reduce avoidable mistakes.
I created this to support organisations and carers who are stepping into advocacy without a roadmap, because credibility, ethics, and discipline matte